Cystic Fibrosis is a chronic illness that shortens the lifespan of it's victims and at this time, there is no cure. Many strides have been made in finding new treatments to prolong life expectancies, but more research is much needed for newer and better treatments and to find, hopefully, one day soon, a cure.

On Sunday, July 11th, 2010, a fundraiser will be held to help raise money for The Cystic Fibrosis Foundation. All proceeds will go directly to the Cystic Fibrosis Foundation. The day will start off with a bike-run, followed by lunch and entertainment from the best cover band in Rhode Island, The Senders. There will be raffles and door prizes galore, and for the little ones Face Painting, Hair Beading, and more.

Deon was diagnosed 2 years ago with this disease, he is a beautiful loving child with a big heart. Once one has met him, he is instantly in your heart and you can't help by wanting to help find a cure for his ailment along with all the other children and adults stricken with CF. Deon wants to help all the crying babies he hears when at Hasbro Children's Hospital. He only thinks of them and wants to make them feel better. He is an inspriration to all who know and love him.

Please take the time to read this webpage and learn more about CF and about the fun filled day we have planned. If you can't make it there, please donate whatever you can. Deon thanks you!!!

"65 Roses" is what little children suffering from cystic fibrosis call their disease. (As the following true story illustrates, the words are much easier for children to pronounce.)

The 65 Roses Story:

Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research. Mary's 4-year-old son, Richard, listened closely to his mother as she made each call.

After several calls, Richard came into the room and told his Mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis. With some trepidation, Mary asked, "What am I working for, Richard?" He answered, "You are working for 65 Roses." Mary was speechless. He could not see the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for 65 Roses."

Since 1965, the term "65 Roses" has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with. The "65 Roses" story has captured the hearts and emotions of all who have heard it. The rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.